28 May 2019
As part of a national collaboration and harmonization effort, SPHN key contributors (among them SIB/DCC) together with the Swiss Biobanking Platform (SBP) have developed a common template for both, the Data Transfer and Use Agreement (DTUA) and the Material Transfer Agreement (MTA). These templates are to facilitate data and material exchange in the context of academic research projects.
10 April 2019
The representatives of the Information and Communication Technology (ICT) departments of the University Hospitals form a new DCC working group, to promote the development of the Swiss-wide IT infrastructure and accelerate the harmonization process regarding the implementation and adoption of technical solutions within SPHN. The mission of the Hospital IT Working Group is complementary to the other Working Groups, bridging the gap with key focus areas, such as semantic interoperability, bioinformatics/data analysis, IT security and BioMedIT interoperability.
4 April 2019
In March, Torsten Schwede passed the leadership baton to Katrin Crameri. In an interview, they share their vision of the PHI group’s mandate and their common longstanding passion to make data-driven medicine a reality in Switzerland.
1 March 2019
What is the difference between SPHN and regular research funding, like SNF? How can multi-site collaborations be supported from an IT perspective? Where can the ethical framework guidelines be found and what is the data governance enforced in hospitals? These were only some of the questions that were addressed during the onboarding meeting in Bern.
1 March 2019
We are pleased to announce two new team members who will fill key roles, bringing additional knowhow and experience to our team.
Katrin Crameri has joined as the new Director Personalized Health Informatics group, and Kristin Gnodtke as Clinical Data Specialist.
4 February 2019
The Swiss Personalized Health Network (SPHN) will join an international group of 22 leading genomic data initiatives working together to enable sharing of genomic and health-related data for research. The Global Alliance for Genomics and Health (GA4GH) has selected SPHN among its 2019 Driver Projects that aim to develop and pilot standards for sharing genomic and health-related data.
20 December 2018
As we advance on our mission to establish nationwide, secure, technical and semantic interoperability of health-related data for personalized health, these seminars are a great opportunity to learn from each other, ask questions and leverage expert know-how from the research teams.
3 December 2018
In December, Martin Fox has joined our team as a BioMedIT Project Manager. He will be working very closely with the experienced and knowledgeable IT and security specialists involved in BioMedIT, defining and managing implementation milestones within each project workstream, as well as monitoring the progress to ensure that the milestones are achieved.
20 November 2018
ETH Zürich: Heinz Stockinger (SIB) and Diana Coman Schmid (SIS) presented the first SPHN training course on Data Privacy and IT Security. Mandated and supported by the SPHN Data Coordination Centre (DCC), this training elaborates on what should be done in practice to protect the patient privacy when performing biomedical research.
7 September 2018
The key objective of the SPHN is to enable cutting-edge personalized health research by establishing nationwide interoperability of health data. Today we report progress achieved in BioMedIT, a project aimed at setting up a nationwide network of secure computing infrastructures, enabling clinical and biomedical research. Each BioMedIT node is affiliated to SIB partner Universities, namely sciCORE, Vital-IT, and SIS.
3 September 2018
Today we publish the policy, which clarifies the roles and responsibilities of various parties relative to Information Security and defines the technical and organisational measures necessary to operate IT infrastructures that support SPHN projects. Everyone involved in SPHN projects that use confidential personal data on one of the BioMedIT Nodes needs to adhere to this policy.
27 March 2018
The SIB and the SDSC are teaming up on developing software platforms, services and best practices for privacy-conscious data-driven science in the context of SPHN. In one of our BioMedIT Interoperability working group’s projects, the joint team will assess the domain-specific requirements for personalized health research in Switzerland.