The BioMedIT project establishes a coordinated nationwide network of secure infrastructures to support computational biomedical research and clinical bioinformatics. Built on the centers of expertise established at our partner universities (regional nodes), this project is managed by the SPHN Data Coordination Centre, a group of the SIB Swiss Institute for Bioinformatics.
How it works
BioMedIT provides researchers anywhere in Switzerland with access to a secure computing environment in which to conduct their data analysis. Researchers would request encoded biomedical data in the context of approved research projects from hospitals across the country, thus enabling authorized project members to access and analyze the data. The “Ethical Framework for Responsible Data Processing in Personalized Health Research of the Swiss Personalized Health Network (SPHN)” provides ethical guidance in relation to personal data processing within the SPHN, with particular emphasis on guidance for data sharing. Typically, prior to any data being transferred, a research project using sensitive human data requires:
the informed consent by the patient that her/his data can be used for research,
the approval of the research project by an ethics committee,
a signed “Data Transfer and Use Agreement” with the hospitals providing the data.
Data will be de-identified and encoded, then encrypted for the transfer to the researcher’s account on a BioMedIT node.